Archive for Cancer

Matthew Shifrin, A Blind Artist Increasing the Accessibility of Lego

Matthew Shifrin sitting at a table with several completed Lego sets. He has ginger hair and sunglasses on.

Matthew Shifrin with some of his Lego creations

Matthew Shifrin is a remarkable figure who has been a positive force in the world despite his lack of something that most people take for granted. Though he was born blind and is only 26, he has already written several musicals and acted in a film. He can speak four languages and is learning another two currently, as well as sing and play the accordion. He created Braille for the Yiddish language. Though he has built himself quite the portfolio of accomplishments, the innovation I am here to discuss was not solely his invention.

On Matthew’s thirteenth birthday, he received a Prince of Persia Lego set from his friend Lilya Finkel. With the set came a binder Lilya made containing hand typed braille instructions. These allowed Matthew to build the set despite his inability to perceive the standard instructions. Before this point, he had played with Lego, but he mostly kept to the Bionicle line. He had a lot of fun following the braille guide to put his set together. Matthew and Lilya would proceed to translate more instructions and standardize a method of communicating exactly what blocks to put where. Here is a sample of what these guides come out sounding like.

     9.1. Place a red 1×2 plate, vertically and centered horizontally,

     on the front two pieces from the previous step. 

     9.2. Place an orange 1×1 plate behind the previous piece. 

In 2017, Lilya Finkel passed away from cancer. Matthew has continued the project in her absence, working with other blind and sighted folks to create accessible instructions in greater numbers. The work is done by pairs of people, a sighted translator and a blind or partially sighted tester. They have currently translated one hundred and eighty four sets, and are constantly putting out more. The largest set they have conquered is the Tower Bridge, at a grand 4295 pieces. The tactile experience of feeling every surface of a Lego sculpture can be very enriching for blind children who cannot otherwise experience the world as we would. You could tell a blind child that the roof of their home slants downward at a gentle angle, but that concept becomes far more realized when they can pore over a model of a home and feel it for themselves. Matthew Shifrin was able to speak directly with members of the Creative Play Lab at the Lego Group, and in 2019 they piloted official audio and braille instructions for four sets. There have since been dozens of official blind-accessible Lego instructions released.

I find the story of Matthew inspirational because it demonstrates that through hardship, through perceived limitations, we can become greater than the people others may judge us to be. In addition, Lilya Finkel demonstrated the traits of an excellent friend, and served others the way Jesus tells us to serve: Generously, thoughtfully, and lovingly. 

 

My Sources:

bricksfortheblind.org

Seeing LEGO Differently

Lego Group to Pilot Lego Audio and Braille Instructions

Scaling Medical Technology with Dr. Aengus Tran

In the world of medicine, very often to hospitals and medical care facilities find themselves unable to treat and prevent diseases because of short-staffed operations. Radiologists can be swamped with work because of the sheer volume of scans they need to review as well as people they need to meet with. Aengus Tran saw this problem arise when he was visiting his home in Vietnam while studying for his degree at the University of New South Whales in Sydney, Australia. The problem of healthcare in the modern world isn’t recognizing and treating diseases, it’s finding a doctor who has enough time on their hands to do both.

Thats why after finishing his degree and postgrad, Dr Tren and his brother Dimitri began developing a way to expand medical diagnosis up to modern needs.

Using A.I. technology and knowledge of medical science, the two developed programs that scan and identify points of interest in chest and CT results. This allows radiologists and other physicians to essentially have a fully functional assistant that finds the most important scans on the most critical patients, placing their cases on the top of the physician’s bucket list so they can manage the crushing workload just a little faster and easier.

What they created, they called Hundson.ai, a machine that is capable identifying, inspecting, highlighting, and learning diseases. Dr. Tren went to school to become a cardiologist but has now found himself running a company as an entrepreneur with his brother and cofounder Dimitri. With eyes looking to the future, they look to expand on the ways their A.I. can assist medical professionals in their work in the most trustworthy and effective way possible. Their expandable and multimodal model is now helping people around the world, and they aim to even transform the way the healthcare system spots and diagnoses disease.

Developing new systems and partnering with healthcare companies and officials (such as Sonic Healthcare), Aengus and Dimitri Tren provide their service to over a million clinicians around the world. To check out their website, click here and read more about it for yourself.

 

Malia Jusczyk: Malia’s Sweet Treats

(Just a warning, this is a really sweet and inspirational story, but also a really sad one.)

In the spring of 2021, 13-year-old Malia Jusczyk won The Greatest Baker Competition against thousands of home and professional bakers of all ages! The prize? $20,000 plus a year’s supply of Stuffed Puffs®! Malia’s love of baking started by helping her family in the kitchen and soon grew into her passion (especially making chocolate cake pops). She focused on high quality ingredients and baked everything fresh and from scratch. Malia started her own bakery, Malia’s Sweet Treats, where she sold her baked goods online. Additionally, during the Covid-19 quarantine, she began teaching classes on Zoom, where she taught and inspired others to bake. Winning the title of the Greatest Baker wasn’t enough for her, and she hoped to compete in TV baking competitions, such as the Kids Baking Championship. Malia was dedicated to learning and improving, and she spent hours each day baking in the kitchen.

However, starting a business was not the only challenge Malia faced. She also battled cancer, yet she would not let this stop her from baking and inspiring other kids. Her advice to young bakers was to “never give up on what you love, not only in cooking, but also in life.” She was sweet and determined, but sadly passed away after a relapse of cancer in 2023. Since then, her family has continued her business, featuring recipes that she had created and donating the profits to support cancer research and treatment.

Malia’s story can encourage everyone to not give up and press on even when facing battles. She treated her customers with love, wanting to inspire them and not just focusing on making a profit. Hard work and determination can achieve great things, as Malia demonstrated when she won the title of Greatest Baker in 2021.

Read more about Malia’s story at: https://greatestbaker.com/media/pdf/GBS-MagFeature2021-FINAL.pdf